I can't upload any photos tonight so they will come later. Today has been a pretty good day for Ammon. He had his sleep study last night. I went up with him last night and stayed with him until the test was over. They ran the test from 10:45 p.m. last night to 6:00 this morning. He had a hard time going to sleep and then wanted to sleep all the way home this morning. When we got home, I put him back to bed and he slept until about 10:00 a.m. I slept in the middle of church - ask Kaitlin, she had to wake me because I snored!
We won't know the results for a few days. He may have to use a bi-pap machine or maybe just oxygen. We're glad it's finally done and that last week is over. Jim was up there with him two or three times and it got really old to spend most of the days at PCMC. Friday they went to the Spina Bifida Clinic and had some tests done. We don't know the results of those, either, but every day he seems to get better. Urine output is normal and he seems to be tolerating his food better. We still don't give him just milk - we give him pedialyte about every other feed, but he's doing much better. The distension isn't nearly so noticeable. We think he's finally on the mend. His voice was much stronger part of the day today than it has been.
In fact, he seems so much better that he went to church today. He got to wear a tie - a brand new orange striped one that I bought in anticipation of this day. It's the first time he's been able to wear a tie since last December. I noticed that his spirits seemed to raise as the day went on and he was around more and more people. His old parents are not a good substitute for his peers - he is getting anxious to go back to school. If he continues to improve, we think he will be able to return to school next week.
When I can get this program to work, I will add a few random pictures of the past month.