Friday, March 21, 2014

Miracles Happen

So today I had the most Spiritual Experience Ever. 3 Sundays ago I asked President Newman how I can meet one of the Apostles. He told me to just pray and Someday that might happen. So I kept praying that that might happen and so today I got to meet one of them Elder Jeffry R. Holland of the Quorum of the Seventy. I was so excited I couldn't breathe "I am positive it was a Revelation from Heaven in Every Step of the Way ". Quoted from Sanctify Yourselves From October 2000 General Conference. It shows that Heavenly Father really does answer Prayers. it has been the greatest week ever!

Saturday, December 28, 2013

Gideon

Gideon is here. He's a great dog, It will take a lot of work for him to listen to Ammon and for Ammon to figure out how to make him do what he wants him to do. We took him on a long walk yesterday and walking by the wheelchair is a challenge. Gideon was not trained to walk next to a wheelchair and he's a little afraid of the power chair. But as the walk continued, it got better. He wouldn't sleep in Ammon's room the first night. He slept there last night without any problem. He's HAIRY! But it is soft hair. We are hoping Ammon gets this down and that the dog will bond with him. That's what needs to happen.

 This is the Williams family that gave us Gideon.
 This is Maddie with Gideon. She is the one that trained Gideon and this was very difficult for her to give him up.

Friday, November 29, 2013

"Real" Thanksgiving

This year Ammon had his first "real" Thanksgiving. What I mean by that is this year he had no supplemental food. He has always sat at the dinner table but has never tasted any of the food on his plate this year. His tastes really surprise me but I'm so happy he is willing to try just about anything that is soft enough to easily chew.

Kaitlin made the spinach dip. Never in a million years did I think Ammon would enjoy it but he kept rubbing his tummy saying "Ummm. Ummm..." Like Bob in "What's Up Bob?" He declared that the spinach dip was like heaven. Huh?  Surprise # 1.

 Ammon ate two deviled eggs. Surprise # 2.  I like them but not enough to go make them except once a year for Thanksgiving. Maybe I'll have to re-think that because protein is what Ammon needs in his diet and he loved the eggs.
 Below is Ammon's plate. He ate it all - mashed potatoes, cheese, olives (he is a true Clark here), raspberry jello, eggs, cranberry sauce and a little bit of the roll. The rolls were a little too chewy for him to eat easily.
It was very, very nice to have him eat with us. He was part of the group in every sense of the way.
A shout out to Kaitlin who did a great job helping get the meal ready. Her food rocked!

We had invited Cliff and Elva Ammons to have dinner with us as well. He has been our home teacher for several years and brings us pies and breads and carrots out of his garden and squash and crenshaw melons. He has been a spectacular home teacher. But now it's our turn to return the favor. Jim and Ammon now home teach him. He is in his 80s and his health is quite poor now. He is scheduled for back surgery in two weeks. Once he has recovered, they will move to Washington to live near their daughter. We will be very sad to see them leave but we're so happy we can have the opportunity to serve them now. Thanksgiving morning around 11:00 they called and said neither of them felt well enough to come so Jim loaded up plates and containers of food and he and Chad delivered it to them.

Ammon now belongs to the HOPE Squad at school. Copy and paste the address below to see what it is all about. You have to be invited to be part of this special group of students and leaders. Because Ammon has such a positive attitude about life, he was an obvious candidate to be part of this group.

http://www.heraldextra.com/news/local/south/salem/shhs-squad-full-of-hope-helps-save-lives/article_7e9dffee-748b-55d6-b83f-62374ee34add.html








Monday, July 8, 2013

Music Makes Him Happy


Music makes Ammon happy. It can get him through the roughest of days. Last Saturday Hal Shelly and his daughters Katie and Melissa came up to visit. Hal brought his guitar with him and he and Katie entertained Ammon with several numbers. Ammon was so excited when he recognized the songs. He sang along with those he knew. Hal said, "Well, if my home teacher can't come and visit me, I guess I'll just have to come and visit him." That visit made Ammon very happy.

Later in the evening Bishop Merrill and his son, Christian (Ammon's age) came up to visit and Christian also brought his guitar with him and sang some songs for Ammon. It was very touching for me to watch the interaction between Ammon and Christian. I took some videos but I can't get them to download with any sound so I'm leaving them off.

Jess and Jen gave Ammon their Ipod and that made Ammon happy beyond belief! He thinks it's his birthday every day now. Adrianne sent a beautiful CD for Ammon to listen to (Mindy Gledhill). I haven't heard it yet but Jim said it is really beautiful. The girls sang for Ammon the day after he got into the hospital (By Heart). I truly believe it was music that jump started his spirits.

Ammon is in a difficult situation. He is not sick. He is generally in good spirits. But it doesn't appear that the hole is healing any time soon. He will stay where he is until Friday when they will re-assess the situation. Surgery isn't a good option but they may have no choice except to chose that route. Having him live with that huge tube down his throat can't be a long-term solution. In short, the doctors don't know what to do and neither do we.  I had no idea we would run into such a difficult problem. I think this will be life-changing for him but I'm not sure just what those changes will be.

He needs your prayers. I need your prayers. Today is very overwhelming for me, personally.

Ammon is the one cheering me up tonight.



Monday, July 1, 2013

Tired & Done With it All!


On Friday night, Ammon had a frosty (homemade one) for dinner. He loved it. About 15 minutes after he ate, I checked in on him to see what he was doing. I noticed that the front of his shirt was wet and thought maybe he had spilled his shake but he said he didn't. So I took him out of his wheelchair and saw that the dressing around the repaired hole where his g-tube had been was leaking. There was no way it should have been leaking at all. The doctors had separated the stomach from the wall of the belly and had stitched both the stomach and the belly separately. But there was the shake leaking out. Jim immediately called the hospital because we were afraid it might be leaking into his peritoneum which could require immediate surgery and would be a hard one to fight. They told us to take him to the ER (yeah, our favorite place) so we left about 8:15 p.m.  Once we got there, they examined him, called in our surgeon's partner and made some decisions.  He called Dr. Scaife (our original surgeon) and they discussed the matter at length. They had me feed Ammon some flavored dye through a large syringe so they could watch the track of the liquid via ultrasound. It was determined that there was no leakage into the peritoneum so surgery was ruled out. We initially wanted them to do surgery immediately and repair the hole. Apparently the stomach adhered back to the belly wall due to scar tissue and then the stitches ruptured open. It was just like we hadn't done the surgery the Monday before.

The options were not good ones. They felt that the tissue surrounding the area was too inflamed and fragile to hold up for another larger, more difficult surgery so they said they needed to pump his stomach via an NG tube which we had promised Ammon would not happen as long as he ate enough to satisfy us. Well, he had done that and here we were, facing the one thing none of us wanted.

It devastated Ammon to have the tube threaded through his nose and down his throat. He cried for hours and hours. He was angry and he was defeated. He said, "Didn't I eat enough, Mom? I tried! Why do I have to do this? I'm tired. My body is tired. Thirty seven surgeries are enough. I'm done. I don't want to do it any more."  I couldn't blame him. I cried with him, filled with regret that the NG tube had to be placed. Filled with sorrow that there weren't many good options and filled with an emotional pain that is hard to describe as you watch your own child suffer and you can only hold him and reassure him that he really doesn't want to die. I'm sure he did at that point. We finally got him admitted at 3:00 a.m. and turned off the lights to the room at 3:30 a.m. It was a rough night for all of us, but especially Ammon.

They began immediately the pump to get liquid out of Ammon's stomach. The goal is to have the stomach stop producing juices so it can be quiet and allow the flow of the acidic material to stop. That will help the inflammation decrease and hopefully will allow the skin to close in itself and heal. There are two more possibilities that we are facing. It may be possible to insert a new G-tube if it looks like the skin won't close but again we may be buying more, new issues like we are trying to fix. If they can't do that or we decide not to go that route, then surgery will have to happen to get that hole closed.

So they need to feed Ammon some nutrition so bulk up his system and get more protein inside him which helps with the healing process. They are doing that with a pic-line. That's like an IV only it goes deep into an artery and they stitch it in place because it will be used long-term. In order to insert a pic-line, Ammon can't move a muscle. (This happened the following afternoon.)

The people doing the procedure came in and asked if he wanted to be sedated or just hold still. I suggested they see if the music therapy people were in the hospital because they were such a good distraction 4 years ago that Ammon didn't need to be sedated. Ammon was all for that idea. The group wasn't in the hospital so we called child life and the woman below is holding an Ipod finding Ammon's favorite music which she let him listen to while they inserted the pic-line.
 This is the woman that put in the pic-line. We had an interesting conversation with her. When I asked Ammon how he wanted to do this, she piped up and said, "Well, Ammon, you are only 17 and you can't make the decision. Your mother will do that." I glared at her and said, "This is Ammon's body. He has a mind of his own and he chooses for the most part (all except the NG tube) what should or should not be done. I just support his choices so it's up to him and we will respect what he wants to do." She looked pretty shocked but she was very respectful after that towards Ammon. In fact, while working, she asked a lot of questions about Ammon. She was very touched to hear how active he has been in school, i.e., dates, Manhawk dance competition, etc. She saw him, finally, as a real young man who is special - and he's a person, not a dummy she has practiced on. It turned out to be a great experience even though it started out a little rocky.
 Ammon did not move a muscle or cry one little bit. He was incredible. She said, "I wish every one of my patients were like he was." (Well, hopefully she will care a little more about them as individuals in the future.)
 So I went on my mandatory walk to clear my head and to see all the new things happening at PCMC. They are tearing up the front of the building but I don't know what they are going to do with the space. The ER wing is now complete and a complete maze - you can definitely get lost in there and get locked out as well.
 There are now several children's statues along the front wall of the hospital just in front of the ER wing. It is very nice.
 While this issue with Ammon isn't the most daunting one he has ever faced (by a long way), emotionally it has been the worst one. He is now old enough to speak up and understand more about what they are doing. They asked him (after the NG tube had been inserted) on a scale of 1-10 what his pain was with 10 being the most severe. He held up 10 fingers and said, "Ten - my emotional pain is 10." For the following two and a half days, he has barely spoken to anyone. He is miserable and sad and depressed as he told me he was. He gave up the fight. It scared me because he's always been such a fighter. Tonight I talked to him and he told him his spirits were lifting just a little. He sounded much better. Now if that darn stomach would just stop producing and clear up, they could pull that tube out and Ammon's spirits would brighten immensely.
 A reflection of the huge new building being built across from PCMC.
We are looking for any little ray of sunshine we can find right now. I found one.


Sunday, May 19, 2013

The Party Has Just Begun

The picture above is of Kylee Adamson.. Last night was really fun. We ate dinner and then we played some games like Sorry, and air hockey and Uno and a little bit of apples to apples. I even got to sing Kylee's mom You Are My Sunshine. It was sweet because her father used to sing that to her before he died so it was good to bring that memory back into her life. Yeah, I am sweet.

Kylee has been one of the peer tutors in our special ed class. She is the one that taught us the Manhawk dance. We all love her! She graduates this week and we'll miss her.

Here's the gang eating BBQ and chips.
 
Kylee is teaching me how to do the cup song from Pitch Perfect.
I finally got it and they all cheered. Kylee, Tommy and Tanner are with me.

This is Tanner Thorpe. We have been friends since 7th grade. We have a good time together.
This was the sweetest night ever! It was fun to hang out with good friends.

Tuesday, March 26, 2013

preference dance

This Last Saturday I went to Preference I went with Hannah Tambasco And Megen Brockbank came with her date Dalen Neilson It Was Super Awesome! She Took Dance From Gillian And she is a sweethart to a T. We first went to megans house to eat dinner and we played disney Scene it and Headbandz and then we went to the dance there were a couple slow songs I even got to request a slow song and the most beautiful thing I did was put My right hand on hannahs hip And put my left one on her hand it was magical.

Thursday, November 15, 2012

Eye Of the Tiger

Yesterday We had a Manhawk at Our school and it was super fun I wanted to do it We did an awesome job after the dance we got 2nd place. By the way the names of the teams were the Chinchillas,Fresh Five,Miami Ice and Suspicious and Delicious It was way fun.

Wednesday, November 7, 2012

Guys And Dolls Review and a Joke

So today In Mrs Wilders Class We Had The Opportunity to Go And see Guys And Dolls I saw it And Did Not Like It It Was All About Gambling To Get a girl And I did Not Care For It So That Is My Review Sorry To Be So Hateful But I do Not Like That Stuff.
How Do you Know there's in elephant in your Refrigerator
You Cannot Open It. Bye.

Friday, November 2, 2012

My awesome Report Card

So today in seminary they passed out Report Cards and I got one and It Says that I have an A In  Seminary and Also Today we are going to redo my room And paint it And Gillian is going to the neighbors house and she just got back and her and I are going to cut A BYU banner out for me To redo my awesome room It is going to be awesome.

Thursday, November 1, 2012

One Step Closer

I hope Mom Doesn't hurt me for Getting this out in the open but Yesterday mom gave me some news that The Make-a-wish Foundation Guy called Mom And he said that Spina Bifida children do not qualify But The Guy Is Going To call Dr Smith And He Is going to fill out the Paperwork And Maybe In A week He will call Us Yay!!! I am One step closer To doing This Dream big!!! 

Friday, October 26, 2012

Term 1 Finale Celebration

Well Today was a very exciting day for me I finished Term 1 so exciting I feel like I just want to party all day   long and Mom is coming home so we can Celebrate Now If i can just finish Terms 2, 3, and 4 This Is Going to be so Awesome!!! Yay for me

Wednesday, October 17, 2012

Movie Review part 3

For this weeks review I decided To review Dolphin Tales Directed By Charles Martin Smith Starring Ashley Judd, Nathan Gamble, Morgan Freeman Kris Kristofferson and Harry Connick Jr. The movie is amazing the best film I have seen Besides The Odd Life Of Timothy Green The cast Is phenomenal the cinemetography is outstanding I personally encourage you to go and see it It is a great family-oriented film I like it That's All For Today Seeya.

Monday, October 15, 2012

Birthday festivities

Last Friday for My birthday I woke up we sang Happy Birthday to me and then opened my presents I got David Archuleta's new CD begin and then. I went to school Everybody wished me a happy birthday and then. For our Photography class. We went to Salem pond to have fun taking pictures and then. after we came back People in my class wrote me Birthday Cards.Then. I came home Gillian and Mia And I just talked outside. Then we Fed and Cathed Me and We drove off to pick Mom and Kaitlin up from work then we headed to the mall And we stopped at Fye And I got 1 CD And 2 DVDS THe First DVD i got was Where The Wild Thing Are And Dolphin Tale It Was Fun.

Saturday, September 29, 2012

Homecoming Dance

Well, Homecoming 2012 has come and gone.  According to Ammon, he had a great time.  Amelia is very tall and to quote Ammon, "She has stilettos on."  Where did he learn that word anyway? Her parents delivered her to our house where we visited for a little while and then Jim and I took the kids down to Salem where they were meeting up with 4 or 5 other couples. (Four of the boys were priests in Ammon's priest quorum.)  When they were done eating, they called us and Jim went down and picked them up and delivered them to the dance. After the dance was over, Jim went down and picked them up and took Amelia home.  It took some work to get all the details figured out, but we got it done.  (Thanks to Jim for all his hard work today to help make this a success.)

(This first picture is focused very well.)


 This is the corsage that Campus Floral made and I think it was one of my all-time favorite ones.
 This was Ammon after he came home. I said, "How was the dance?" He answered below with his arms spread out wide, "IT WAS AWESOME!"

Wednesday, September 26, 2012

A big day

Today It was a normal day I got to go to my first club. Yesterday Saturday I get to go To Homecoming and Next Wednesday is My concert  And it is also general conference Saturday and sunday and Speaking of Homecoming We will first Get to Eat at my place And Then When We get There We will Get To Dance And Then get Our pictures Taken Its going to be so much fun.

Thursday, September 20, 2012

High school Happenings

So So far school is great for me the halls are not crowded and my classes are great I have Mr Poole for english, Mr Bills,for choir Brother Gividen for Seminary, and Mr Andrews For Photography It Is Great GO SKYHAWKS

Homecoming

So For all the guys out there Next Saturday I am going to the Homecoming Dance with A friend who is in my Photography class Her name is Amelia Weight and we are just going to have a good time and boogie the night away It is going to be fun I am so excited.

Tuesday, August 7, 2012

Thursday's Heroes 2012

Ammon got to go to BYU Thursday's Heroes Reunion tonight. It was blazing hot but we had a great time anyway.
Coach Mendenhall knew who Ammon was as soon as he saw him.

 Ammon's explaining how he broke his arm. He told Coach Mendenhall, "Sunday night I hurt and I cried." The coach said, "It's ok to cry. I cry sometimes - even at BYU." 
 One very happy camper.
 Justin -- Can't remember his name but he sat at the dinner table with us last year and again this year. I heard him tell a friend as soon as he walked onto the field, "I've got to find my man, Ammon." Loved that mohawk.  He is a tackle. He's a lot of fun.
 Kyle VanNoy - a really great player.
 Michael Yeck - I know his wife through work. A really great young man who is trying to put on more weight. He is an offensive tackle. He told us that he has been working with the nutritionists this year and they are trying to get him to bulk up. That means they want him to eat 7,000 calories a day. He said, "I can't eat that much food. Eating isn't fun when you have to eat that much."
 Player in the hat is the quarterback, Riley Nelson.
Ammon got to meet Max Hall again this year. He was the quarterback when Ammon was inducted as a Hero. He is waiting to see if he gets picked up by the NFL as a free agent this year but is most likely going to stay on at BYU as a staff member working with the quarterbacks.
Like always, this is a wonderful event. We sat at the table with a young woman with three beautiful little children. Her husband was a Thursday Hero last September. He had cancer. Two days after he was inducted, he went into the hospital where they told him he didn't have much longer to live. He lived until last May. She will always be invited to be part of this group. It's very touching to see how some of the players really connect with the kids. Some do not but many of the biggest, toughest guys are softies at heart - you can just tell.
GO COUGARS!!

Monday, July 30, 2012

Accident

Sunday night Jim and Ammon went home teaching. When they came back home, Ammon was coming down the driveway in his manual wheelchair.  There are some cracks in the cement and one of his wheels hit a crack just the wrong way and it flipped the wheelchair forward. Ammon hit his forehead, scraped his left elbow pretty badly and broke the humorous bone at the top of his right arm.  We gave him some Tylenol and Jim gave him a blessing. He slept through the night but this morning he couldn't use his arm very well.  Jim took him to the pediatrician, Dr. Knochel. He had Jim take Ammon over to the radiation department at the hospital. Dr. Egbert read the x-ray and called Dr. Wallentine (doctor that did my knee surgery) to consult with him. The bone is broken but they cannot cast this particular site. So Ammon has his arm in a pretty big sling and it will stay there for three weeks.  No surgery will be required for which we are most grateful.  Ammon is pretty bummed out about this because he can't use the computer, can't type and can't hold a book with two hands - nor has he figured out a way yet that he can use his Kindle.  


 It's a good thing that his hospital bed can rise and we can move the bed around the room. At least he can watch TV!  I think it's going to be a very long three weeks for this kiddo.

Friday, July 27, 2012

New stuff

First I would like to start with an idiom I know only too well that I can't win the lottery and now I would like to tell you what I did with dad yesterday. Wednesday I went to the doctors with dad once again he and I go a clean bill of health. first we Fed and cathed me. then we took off and went to Dr Frandson to look at his infection he recommended he go to the hospital to get an ultrasound he said it looked like there was no puss on his belly then. we went home to Feed and cath me again and then we wentt to Dr Peterson  he is a great dermatologists he looked at my skin and he reommended that I put this new shamppoo that we then got at the pharmacy. and then dad took me home and He Fed and cathed me for the last time Wednesday and then put me on the potty and that was it. and now I would like to tell you about the book Walt Disney The Triumph Of the American Imagination By Neal Gabler I would higly recommend it It is interesting To the the beginning of walt to his laugh-o-grams to mickey mouse and Snow White Even to Walts death it is interesting  I recommend you go out and get it its good well goodbye until the next post this is Ammon Clark signing off













white this bo

Sunday, July 22, 2012

Walk with Mom

Ammon took these photos on today's walk.

Huge new house.
 Cool mailbox!

 This is the only way to garden in Elk Ridge.
Good job, Ammon. 

Saturday, July 21, 2012

Indexing

Ammon was given this little award along with the biggest Hershey candy bar I've ever seen. He received it during Priesthood last Sunday. I am very impressed with his abilities. I don't know how to index. Jim does some but Ammon has learned to do this on his own with no help from anyone. Yesterday he did 40 names. Since the award he has done about 120 additional names.  Very impressive, indeed!

On Monday night during FHE we talked about indexing and the temple and what they do with the names that are indexed.  We are very excited about the work that Ammon does and that he is blessed with the ability to read the names and the writing.  Way to go, Ammon!  You continue to set a great example for all of us.







Saturday, July 14, 2012

Picture Taking

Mom let me take pictures today at Uncle Jack's.

Aunt Nelva
Some of Aunt Nelva's flowers.

Barns
Dad
Jen and Austin

Monday, July 9, 2012

BYU adventure

Thursday Jason and I went to BYU it was exciting a little we went to the Cannon Center I finally got to neet Dean I got to sit with Mom and Jason and Kaitlin we had a good lunch. Then walked around campus in the bookstore and the joseph smith building and that was it. it was so rainy i had to put my hoody over my head

Wednesday, July 4, 2012

My book of childhood memories

Today when Jason was here my mom brought up my big book of childhood memories. It has newspaper articles,  facts about me, pictures of me, and a journal of all my doctor visits. We also did indexing we got a third of it done. And today was also Jason's first day having dinner with us, Jason thought it was delicious. Happy 4 of July.

Saturday, June 30, 2012

Carnival Adventure

Today Jason and I went to the carnival at the park and we met some new people and we were ticket salesmen we even saw Seth Mason. We played some games like golf,  bean bag toss, the fishing game, and basketball with Garret May. Then we face painted I got the Y on my cheek it stands for BYU. We looked at all the cars my favorite was the pontiac because it was blue.

Thursday, June 28, 2012

Groovy Movie

Today watched The Emperor's New Groove it was funny. I liked the part where the old guy gets thrown out the window for throwing off the emperors groove and the part where Pacha attempts to give him the kiss of life after the waterfall. The songs in there are great  one song I like in their its my favorite song it is called My funny friend and me by Sting I love that song and the CGI is amazingly fantastic and the voices are phenomenal I have always liked John Goodman. That is why I like and have always liked disney movies.

Tuesday, June 26, 2012

A Warm Day at the Park

Today we went to the park, and it was nice weather outside. I saw some familliar faces including Mr. Hiatt and I also saw that BYU sticker on the back of a car, go cougars. I also saw construction on the road wow is it busy and then while we went to the park we sat and talked at the pavillion.

Monday, June 25, 2012

I Joined facebook

Saturday night I told my mom that I wanted to join facebook I  decided to start because my mom thinks it would be a great way to connect with friends everyday. Yay!!!