This year Ammon had his first "real" Thanksgiving. What I mean by that is this year he had no supplemental food. He has always sat at the dinner table but has never tasted any of the food on his plate this year. His tastes really surprise me but I'm so happy he is willing to try just about anything that is soft enough to easily chew.
Kaitlin made the spinach dip. Never in a million years did I think Ammon would enjoy it but he kept rubbing his tummy saying "Ummm. Ummm..." Like Bob in "What's Up Bob?" He declared that the spinach dip was like heaven. Huh? Surprise # 1.
A shout out to Kaitlin who did a great job helping get the meal ready. Her food rocked!
We had invited Cliff and Elva Ammons to have dinner with us as well. He has been our home teacher for several years and brings us pies and breads and carrots out of his garden and squash and crenshaw melons. He has been a spectacular home teacher. But now it's our turn to return the favor. Jim and Ammon now home teach him. He is in his 80s and his health is quite poor now. He is scheduled for back surgery in two weeks. Once he has recovered, they will move to Washington to live near their daughter. We will be very sad to see them leave but we're so happy we can have the opportunity to serve them now. Thanksgiving morning around 11:00 they called and said neither of them felt well enough to come so Jim loaded up plates and containers of food and he and Chad delivered it to them.
Ammon now belongs to the HOPE Squad at school. Copy and paste the address below to see what it is all about. You have to be invited to be part of this special group of students and leaders. Because Ammon has such a positive attitude about life, he was an obvious candidate to be part of this group.
Monday, July 8, 2013
Music makes Ammon happy. It can get him through the roughest of days. Last Saturday Hal Shelly and his daughters Katie and Melissa came up to visit. Hal brought his guitar with him and he and Katie entertained Ammon with several numbers. Ammon was so excited when he recognized the songs. He sang along with those he knew. Hal said, "Well, if my home teacher can't come and visit me, I guess I'll just have to come and visit him." That visit made Ammon very happy.
Later in the evening Bishop Merrill and his son, Christian (Ammon's age) came up to visit and Christian also brought his guitar with him and sang some songs for Ammon. It was very touching for me to watch the interaction between Ammon and Christian. I took some videos but I can't get them to download with any sound so I'm leaving them off.
Jess and Jen gave Ammon their Ipod and that made Ammon happy beyond belief! He thinks it's his birthday every day now. Adrianne sent a beautiful CD for Ammon to listen to (Mindy Gledhill). I haven't heard it yet but Jim said it is really beautiful. The girls sang for Ammon the day after he got into the hospital (By Heart). I truly believe it was music that jump started his spirits.
Ammon is in a difficult situation. He is not sick. He is generally in good spirits. But it doesn't appear that the hole is healing any time soon. He will stay where he is until Friday when they will re-assess the situation. Surgery isn't a good option but they may have no choice except to chose that route. Having him live with that huge tube down his throat can't be a long-term solution. In short, the doctors don't know what to do and neither do we. I had no idea we would run into such a difficult problem. I think this will be life-changing for him but I'm not sure just what those changes will be.
He needs your prayers. I need your prayers. Today is very overwhelming for me, personally.
Ammon is the one cheering me up tonight.
Monday, July 1, 2013
On Friday night, Ammon had a frosty (homemade one) for dinner. He loved it. About 15 minutes after he ate, I checked in on him to see what he was doing. I noticed that the front of his shirt was wet and thought maybe he had spilled his shake but he said he didn't. So I took him out of his wheelchair and saw that the dressing around the repaired hole where his g-tube had been was leaking. There was no way it should have been leaking at all. The doctors had separated the stomach from the wall of the belly and had stitched both the stomach and the belly separately. But there was the shake leaking out. Jim immediately called the hospital because we were afraid it might be leaking into his peritoneum which could require immediate surgery and would be a hard one to fight. They told us to take him to the ER (yeah, our favorite place) so we left about 8:15 p.m. Once we got there, they examined him, called in our surgeon's partner and made some decisions. He called Dr. Scaife (our original surgeon) and they discussed the matter at length. They had me feed Ammon some flavored dye through a large syringe so they could watch the track of the liquid via ultrasound. It was determined that there was no leakage into the peritoneum so surgery was ruled out. We initially wanted them to do surgery immediately and repair the hole. Apparently the stomach adhered back to the belly wall due to scar tissue and then the stitches ruptured open. It was just like we hadn't done the surgery the Monday before.
The options were not good ones. They felt that the tissue surrounding the area was too inflamed and fragile to hold up for another larger, more difficult surgery so they said they needed to pump his stomach via an NG tube which we had promised Ammon would not happen as long as he ate enough to satisfy us. Well, he had done that and here we were, facing the one thing none of us wanted.
It devastated Ammon to have the tube threaded through his nose and down his throat. He cried for hours and hours. He was angry and he was defeated. He said, "Didn't I eat enough, Mom? I tried! Why do I have to do this? I'm tired. My body is tired. Thirty seven surgeries are enough. I'm done. I don't want to do it any more." I couldn't blame him. I cried with him, filled with regret that the NG tube had to be placed. Filled with sorrow that there weren't many good options and filled with an emotional pain that is hard to describe as you watch your own child suffer and you can only hold him and reassure him that he really doesn't want to die. I'm sure he did at that point. We finally got him admitted at 3:00 a.m. and turned off the lights to the room at 3:30 a.m. It was a rough night for all of us, but especially Ammon.
They began immediately the pump to get liquid out of Ammon's stomach. The goal is to have the stomach stop producing juices so it can be quiet and allow the flow of the acidic material to stop. That will help the inflammation decrease and hopefully will allow the skin to close in itself and heal. There are two more possibilities that we are facing. It may be possible to insert a new G-tube if it looks like the skin won't close but again we may be buying more, new issues like we are trying to fix. If they can't do that or we decide not to go that route, then surgery will have to happen to get that hole closed.
So they need to feed Ammon some nutrition so bulk up his system and get more protein inside him which helps with the healing process. They are doing that with a pic-line. That's like an IV only it goes deep into an artery and they stitch it in place because it will be used long-term. In order to insert a pic-line, Ammon can't move a muscle. (This happened the following afternoon.)
The people doing the procedure came in and asked if he wanted to be sedated or just hold still. I suggested they see if the music therapy people were in the hospital because they were such a good distraction 4 years ago that Ammon didn't need to be sedated. Ammon was all for that idea. The group wasn't in the hospital so we called child life and the woman below is holding an Ipod finding Ammon's favorite music which she let him listen to while they inserted the pic-line.
A reflection of the huge new building being built across from PCMC.
We are looking for any little ray of sunshine we can find right now. I found one.
Sunday, May 19, 2013
The picture above is of Kylee Adamson.. Last night was really fun. We ate dinner and then we played some games like Sorry, and air hockey and Uno and a little bit of apples to apples. I even got to sing Kylee's mom You Are My Sunshine. It was sweet because her father used to sing that to her before he died so it was good to bring that memory back into her life. Yeah, I am sweet.
Kylee has been one of the peer tutors in our special ed class. She is the one that taught us the Manhawk dance. We all love her! She graduates this week and we'll miss her.
Here's the gang eating BBQ and chips.
|Kylee is teaching me how to do the cup song from Pitch Perfect.|
I finally got it and they all cheered. Kylee, Tommy and Tanner are with me.
This is Tanner Thorpe. We have been friends since 7th grade. We have a good time together.
This was the sweetest night ever! It was fun to hang out with good friends.
Tuesday, March 26, 2013
This Last Saturday I went to Preference I went with Hannah Tambasco And Megen Brockbank came with her date Dalen Neilson It Was Super Awesome! She Took Dance From Gillian And she is a sweethart to a T. We first went to megans house to eat dinner and we played disney Scene it and Headbandz and then we went to the dance there were a couple slow songs I even got to request a slow song and the most beautiful thing I did was put My right hand on hannahs hip And put my left one on her hand it was magical.
Thursday, November 15, 2012
Yesterday We had a Manhawk at Our school and it was super fun I wanted to do it We did an awesome job after the dance we got 2nd place. By the way the names of the teams were the Chinchillas,Fresh Five,Miami Ice and Suspicious and Delicious It was way fun.
Wednesday, November 7, 2012
So today In Mrs Wilders Class We Had The Opportunity to Go And see Guys And Dolls I saw it And Did Not Like It It Was All About Gambling To Get a girl And I did Not Care For It So That Is My Review Sorry To Be So Hateful But I do Not Like That Stuff.
How Do you Know there's in elephant in your Refrigerator
You Cannot Open It. Bye.
How Do you Know there's in elephant in your Refrigerator
You Cannot Open It. Bye.
Friday, November 2, 2012
So today in seminary they passed out Report Cards and I got one and It Says that I have an A In Seminary and Also Today we are going to redo my room And paint it And Gillian is going to the neighbors house and she just got back and her and I are going to cut A BYU banner out for me To redo my awesome room It is going to be awesome.
Thursday, November 1, 2012
I hope Mom Doesn't hurt me for Getting this out in the open but Yesterday mom gave me some news that The Make-a-wish Foundation Guy called Mom And he said that Spina Bifida children do not qualify But The Guy Is Going To call Dr Smith And He Is going to fill out the Paperwork And Maybe In A week He will call Us Yay!!! I am One step closer To doing This Dream big!!!
Friday, October 26, 2012
Well Today was a very exciting day for me I finished Term 1 so exciting I feel like I just want to party all day long and Mom is coming home so we can Celebrate Now If i can just finish Terms 2, 3, and 4 This Is Going to be so Awesome!!! Yay for me
Wednesday, October 17, 2012
For this weeks review I decided To review Dolphin Tales Directed By Charles Martin Smith Starring Ashley Judd, Nathan Gamble, Morgan Freeman Kris Kristofferson and Harry Connick Jr. The movie is amazing the best film I have seen Besides The Odd Life Of Timothy Green The cast Is phenomenal the cinemetography is outstanding I personally encourage you to go and see it It is a great family-oriented film I like it That's All For Today Seeya.
Monday, October 15, 2012
Last Friday for My birthday I woke up we sang Happy Birthday to me and then opened my presents I got David Archuleta's new CD begin and then. I went to school Everybody wished me a happy birthday and then. For our Photography class. We went to Salem pond to have fun taking pictures and then. after we came back People in my class wrote me Birthday Cards.Then. I came home Gillian and Mia And I just talked outside. Then we Fed and Cathed Me and We drove off to pick Mom and Kaitlin up from work then we headed to the mall And we stopped at Fye And I got 1 CD And 2 DVDS THe First DVD i got was Where The Wild Thing Are And Dolphin Tale It Was Fun.
Saturday, September 29, 2012
Well, Homecoming 2012 has come and gone. According to Ammon, he had a great time. Amelia is very tall and to quote Ammon, "She has stilettos on." Where did he learn that word anyway? Her parents delivered her to our house where we visited for a little while and then Jim and I took the kids down to Salem where they were meeting up with 4 or 5 other couples. (Four of the boys were priests in Ammon's priest quorum.) When they were done eating, they called us and Jim went down and picked them up and delivered them to the dance. After the dance was over, Jim went down and picked them up and took Amelia home. It took some work to get all the details figured out, but we got it done. (Thanks to Jim for all his hard work today to help make this a success.)
(This first picture is focused very well.)
This is the corsage that Campus Floral made and I think it was one of my all-time favorite ones.
Wednesday, September 26, 2012
Today It was a normal day I got to go to my first club. Yesterday Saturday I get to go To Homecoming and Next Wednesday is My concert And it is also general conference Saturday and sunday and Speaking of Homecoming We will first Get to Eat at my place And Then When We get There We will Get To Dance And Then get Our pictures Taken Its going to be so much fun.
Thursday, September 20, 2012
Tuesday, August 7, 2012
Ammon got to go to BYU Thursday's Heroes Reunion tonight. It was blazing hot but we had a great time anyway.
Coach Mendenhall knew who Ammon was as soon as he saw him.
Ammon's explaining how he broke his arm. He told Coach Mendenhall, "Sunday night I hurt and I cried." The coach said, "It's ok to cry. I cry sometimes - even at BYU."
One very happy camper.
Kyle VanNoy - a really great player.
Player in the hat is the quarterback, Riley Nelson.
Like always, this is a wonderful event. We sat at the table with a young woman with three beautiful little children. Her husband was a Thursday Hero last September. He had cancer. Two days after he was inducted, he went into the hospital where they told him he didn't have much longer to live. He lived until last May. She will always be invited to be part of this group. It's very touching to see how some of the players really connect with the kids. Some do not but many of the biggest, toughest guys are softies at heart - you can just tell.
Monday, July 30, 2012
Sunday night Jim and Ammon went home teaching. When they came back home, Ammon was coming down the driveway in his manual wheelchair. There are some cracks in the cement and one of his wheels hit a crack just the wrong way and it flipped the wheelchair forward. Ammon hit his forehead, scraped his left elbow pretty badly and broke the humorous bone at the top of his right arm. We gave him some Tylenol and Jim gave him a blessing. He slept through the night but this morning he couldn't use his arm very well. Jim took him to the pediatrician, Dr. Knochel. He had Jim take Ammon over to the radiation department at the hospital. Dr. Egbert read the x-ray and called Dr. Wallentine (doctor that did my knee surgery) to consult with him. The bone is broken but they cannot cast this particular site. So Ammon has his arm in a pretty big sling and it will stay there for three weeks. No surgery will be required for which we are most grateful. Ammon is pretty bummed out about this because he can't use the computer, can't type and can't hold a book with two hands - nor has he figured out a way yet that he can use his Kindle.
Friday, July 27, 2012
First I would like to start with an idiom I know only too well that I can't win the lottery and now I would like to tell you what I did with dad yesterday. Wednesday I went to the doctors with dad once again he and I go a clean bill of health. first we Fed and cathed me. then we took off and went to Dr Frandson to look at his infection he recommended he go to the hospital to get an ultrasound he said it looked like there was no puss on his belly then. we went home to Feed and cath me again and then we wentt to Dr Peterson he is a great dermatologists he looked at my skin and he reommended that I put this new shamppoo that we then got at the pharmacy. and then dad took me home and He Fed and cathed me for the last time Wednesday and then put me on the potty and that was it. and now I would like to tell you about the book Walt Disney The Triumph Of the American Imagination By Neal Gabler I would higly recommend it It is interesting To the the beginning of walt to his laugh-o-grams to mickey mouse and Snow White Even to Walts death it is interesting I recommend you go out and get it its good well goodbye until the next post this is Ammon Clark signing off
white this bo
white this bo
Sunday, July 22, 2012
Saturday, July 21, 2012
Ammon was given this little award along with the biggest Hershey candy bar I've ever seen. He received it during Priesthood last Sunday. I am very impressed with his abilities. I don't know how to index. Jim does some but Ammon has learned to do this on his own with no help from anyone. Yesterday he did 40 names. Since the award he has done about 120 additional names. Very impressive, indeed!
On Monday night during FHE we talked about indexing and the temple and what they do with the names that are indexed. We are very excited about the work that Ammon does and that he is blessed with the ability to read the names and the writing. Way to go, Ammon! You continue to set a great example for all of us.
Saturday, July 14, 2012
Monday, July 9, 2012
Thursday Jason and I went to BYU it was exciting a little we went to the Cannon Center I finally got to neet Dean I got to sit with Mom and Jason and Kaitlin we had a good lunch. Then walked around campus in the bookstore and the joseph smith building and that was it. it was so rainy i had to put my hoody over my head
Wednesday, July 4, 2012
Today when Jason was here my mom brought up my big book of childhood memories. It has newspaper articles, facts about me, pictures of me, and a journal of all my doctor visits. We also did indexing we got a third of it done. And today was also Jason's first day having dinner with us, Jason thought it was delicious. Happy 4 of July.
Saturday, June 30, 2012
Today Jason and I went to the carnival at the park and we met some new people and we were ticket salesmen we even saw Seth Mason. We played some games like golf, bean bag toss, the fishing game, and basketball with Garret May. Then we face painted I got the Y on my cheek it stands for BYU. We looked at all the cars my favorite was the pontiac because it was blue.
Thursday, June 28, 2012
Today watched The Emperor's New Groove it was funny. I liked the part where the old guy gets thrown out the window for throwing off the emperors groove and the part where Pacha attempts to give him the kiss of life after the waterfall. The songs in there are great one song I like in their its my favorite song it is called My funny friend and me by Sting I love that song and the CGI is amazingly fantastic and the voices are phenomenal I have always liked John Goodman. That is why I like and have always liked disney movies.
Tuesday, June 26, 2012
Today we went to the park, and it was nice weather outside. I saw some familliar faces including Mr. Hiatt and I also saw that BYU sticker on the back of a car, go cougars. I also saw construction on the road wow is it busy and then while we went to the park we sat and talked at the pavillion.
Monday, June 25, 2012
Wednesday, June 20, 2012
Since I did not have anything to post today, I decided to post on Mom's hair. Yesterday when Jason and I were about to type a lesson Mom came in and I said Wow! I was amazed her new haircut was the most beautiful haircut ever. My mom and I made a bet to see whether my dad would notice it or not and we won the bet since my dad didn't notice it.
Tuesday, June 19, 2012
Youth Conference, June 2012
Here are some photos taken of Ammon at youth conference. We sure appreciate Kaitlin going down with Ammon to Snow College to spend 2 1/2 days there. They slept over and Ammon participated as much as possible. They had water activities the first day and a dance that night. (Ammon LOVES dances.) The second day they had a ropes course event and listened to a speaker. That evening they watched the movie, "War Horse." On the last morning, they had a testimony meeting. Ammon bore his and said, "I gave a shout out to you, Mom and said it's because you are always there for me and I'll always be there for you even when you die." Hmm -- Sweet kid.