Ammon is just hanging in here waiting for his body to decide to wake up and start working. He has a busy week this week and we hope he has the energy to do it all.
Tomorrow he has a post-op check with the ENT, Dr. Smith. Unless things really change between now and Tuesday, he will have another long doctor's appointment with Dr. Valdez, his pediatrician, to come up with something other than what we are doing. On Friday he is supposed to go to the Spina Bifida Clinic at PCMC.
We met with Dr. Valdez on Friday afternoon and spent three hours in the office. They did an ultrasound of Ammon's kidneys, stomach, plural cavity, bladder and intestines. One kidney is pretty sick looking but there didn't appear to be enough pressure to have any reflux so that is good. Everything is pretty distended still. It looks like the problem is with the large intestine. It has a lot of debris in it, meaning it isn't cleaning out properly. There must still be a block somewhere that hasn't been pinpointed yet. We have been flushing him every day using Miralax but it doesn't appear to be really taking care of the main problem. Ammon's belly is still very distended. He doesn't seem to be in a lot of pain and is fairly complacent about everything. If things haven't changed by Tuesday, I suspect Dr. Valdez will get the GI specialists involved and we may end up back at PCMC. We're hoping it will be just for a scope or ultrasound or something simple that can be taken care of in a day at the office.
Until then, Ammon is just hanging in there trying to keep occupied so he isn't so darn bored.
Visits are now appreciated. He misses people, misses school, misses his nurses (Richard and Todd) and misses visiting with anybody--somebody.